Forum Premature

Dalyan has BPD.

3 replies

IvyB
Because our son was born 13 weeks too early and his lung maturation didn't have time to kick in. It came out of nowhere as an emergency. Dalyan has BPD.
It's a combination of prematurity where the lungs were still very immature for a long time.
But also a medical aspect where he had to be ventilated.
That's why I want to give some info.

BPD (CLD)
BPD stands for Bronchopulmonary Dysplasia. This is a chronic lung condition characterized by persistent breathing difficulties, especially in premature children. Almost all children with BPD are ventilated in the period after birth. A baby's lungs are only truly 'ready' after 34 to 35 weeks of gestation. If a baby is born before that time, it often causes breathing problems.
BPD falls under CLD (Chronic Lung Disease)
Alveoli
Before the 26th week of pregnancy, there are hardly any alveoli formed yet, and after 26 weeks they are there, but they don't stay open on their own after every breath. Sometimes it's enough to increase the oxygen percentage in the incubator. More often, however, the child needs to be ventilated, with a tube in the windpipe. The unfortunate thing is that precisely due to the oxygen administration and ventilation pressure, which is needed to keep the child alive, the lungs can get damaged. This is especially the case if a child needs a lot of oxygen or high ventilation pressure for a long time, or if the lungs are still very immature.
Chronic lung disease
This lung damage is called bronchopulmonary dysplasia (BPD). The term 'chronic lung disease' (CLD) is also often used for this. The more immature the child, the greater the chance of BPD. Children with BPD have great difficulty breathing. They get short of breath with the slightest exertion. Especially while they are still so small, their lungs can only supply their body with enough oxygen with great effort. As they grow, new and more lung tissue is formed, which is essential to outgrow the lung problems.
Consequences
Severe BPD has a profound impact on the lives of the children who suffer from it and their parents. Children with BPD have more respiratory problems (colds, bronchitis, asthma) than premature children without BPD. They are at a greater risk of physical or mental disabilities. This is because BPD children often suffer brain damage due to oxygen deficiency. Moreover, the child uses all its energy for the primary life need: breathing, and there is little room left to develop further. They are often irritable and stress-sensitive.

Over time, the symptoms decrease, but the first years of life of infants with BPD are characterized by frequent lung infections, shortness of breath, and severe feeding problems. As a result, tube feeding, oxygen supplementation, and medication may be needed at home. The children often have additional illnesses, such as neurological problems, severe eye problems, and hearing damage. Fortunately, there are increasingly more possibilities for treatment, but also for the prevention or avoidance of BPD, so that the prospects for a child with BPD have gradually improved. The term BPD is still widely used, but the term CLD (chronic lung disease) is becoming more and more common.

Replies

  1. * #2

    @IvyB,

    Hang in there, I hope you're holding up okay. I really hope everything works out fine.
    Sending lots of strength and hoping the doctor has good news..

    Love, Ju or rather mavanmi
  2. IvyB started this #3

    I've done my best to share this information.
    It's so hard to explain.
    So I thought I'd do it this way.

    It's quite intense right now, but it's okay.
    I've posted an update in another thread.

    Xx
  3. Marijke #4

    Just the same here. It's been 4 years since then, and things are better now. Still often have secretions and low saturations, but with breathing therapy we can correct a lot.

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