Forum Health

Yes or no NIPT test

12 replies

Anonymous
Hey ladies,

I have a quick question out of pure curiosity.
Are there any ladies here who consciously choose not to have the NIPT test done?
My husband and I have made this choice consciously, but I was wondering if we are unique in this because I read more about women who do have the test done than those who don't.

Curious to hear about experiences with this.

Replies

  1. Hartje #2

    Not here either. The 20-week ultrasound results are enough for us. If there are any abnormalities where a C-section would be better, you'll know then. But this is a sensitive topic, I think, and very personal.

  2. Cinta Guest #3

    I also know people who don't do it. And it's not mandatory anyway.

    I did it myself because of my age and previous issues. Just to know that if something were wrong, I could prepare for it. But I totally understand not doing it, especially for people who are younger.

  3. ---- #4

    I did take the NIPT test.

    Now I have to say that there's a 44% chance that the test result isn't accurate for me; there's always a 25% chance of a false positive anyway.

    To get back to the question of whether you should do the test or not, I find it really double-edged. If the amniocentesis shows that our baby is healthy, I would have saved myself a whole lot of stress if I hadn't done the NIPT. But if it turns out that my baby has Down syndrome, I'm still very glad that tests like the NIPT exist, since we absolutely don't want to bring a disabled child into the world.

    I don't know what wisdom is, but I think that if you know for sure that you wouldn't want to have a disabled child, then I'd do the test.

    I'll let you know what the amniocentesis result is!

  4. Anonymous Guest #5

    What a beautiful profile picture!!
    I naturally hope that your baby won't be disabled, but I especially hope that you decide to keep your baby!
    (By the way, I've also often heard that after negative reports/results, a healthy baby was born anyway!)

  5. Anonymous Guest #6

    We also consciously chose not to do the NIPT. We love our baby from the very beginning, disabled or not... Even if we knew our baby would have Down syndrome, we would still want to care for them with all our love. Killing a child is never an option for us...

  6. Anonymous started this #7

    Oh Bibi!
    That’s really intense, I hope everything goes well for you from here on out.

    Having a baby is absolutely not an option for me and my husband either, and the baby is so welcome that we’ll love them unconditionally.
    We’re already doing that with little Uk!

    It’s quite special to read that we’re not the only ones here!

    Of course, I wish everyone a beautiful pregnancy

  7. ---- #8

    Me.

  8. SabineY #9

    I probably should, or well, it's recommended to do the test, because I have a physical disability myself and we can prepare ourselves if it turns out to be a disorder. Termination is absolutely not an option, but this way we can be prepared for... and take it into account. Also, because I'm taking medication, the chance of a congenital anomaly is slightly higher. But anyway, it's very much loved, whether disabled or not. Maybe that's because I have a disability myself and I would never be able to look myself in the eye again if I were to terminate because of a disability. Extra thing for me.

  9. proud_mommy #10

    We didn't do it either. It's smart to do it to prepare yourself. I myself could never do an abortion.

  10. Orchidea #11

    My husband and I have decided to go ahead with it. Whether I would actually have an abortion if the baby had Down syndrome, I have no idea. But we've thought about it for quite a while, and I think it varies for everyone. We also just felt good knowing that the baby is healthy; that's what matters most. I find it really difficult to share my opinion on the NIPT test. It's often such a sensitive topic!

  11. Anne #12

    My husband and I also chose to have the NIPT test done. We didn't need to know if our baby would have Down syndrome. If our child had Down syndrome, we would fight hard to give them the most beautiful life possible (and from what I see around me, I think that often works out well enough).

    For us, the deciding factor was that the NIPT test also screens for Patau syndrome and Edwards syndrome. These are two conditions where a baby is almost never viable, is born with severe disabilities, and wouldn't survive the first year of life. In that case, we would want to terminate the pregnancy as soon as possible.

    The NIPT test is always a probability calculation. But if the result is positive, follow-up testing will naturally follow to confirm or rule out the result.

  12. Tooby #13

    I’d really like to take such a test, but only to be prepared. Having it removed isn’t an option for us.

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