Endometriosis

Exciting, Lilly! Is your boyfriend/husband coming with you?
I have these symptoms:
- For the past few months: muscle pain in my legs starting a week before my period until it's over.
- Severe abdominal pain starting a few days before, truly terrible pain that's unbearable without painkillers; otherwise, I end up vomiting and fainting.
- Fatigue
- Nauseous before and during my period.
Not really super convincing endometriosis symptoms, right? But where else do those weird sore legs and stuff come from.. and I'm definitely not super fertile, otherwise it would have happened already.
Greetings!

Oh, how fast time flies, Lilly! June 14th already! It's great that everything was checked properly and taken seriously! Did the internal exam hurt? I hope this helps you both see your wish come true!

Oh, that's so nice that you're getting help so quickly! At least this time they're finally taking you seriously! Good luck, girl, and hopefully you'll have the most positive outcome after the surgery!

I totally get it! I was so scared too, and when they came to insert the IV, I was shaking like a leaf! But really, you just sleep peacefully (that feeling is so nice when they put you to sleep, hehe), and the next thing you know, you wake up and it’s already done. You don’t even feel the pain because of the medication, so that’s great too. Well, everyone kept reassuring me, but it didn’t help You really have to experience it yourself, but everything will be fine!

Mwa, I didn't really have pain, but I was constantly sooo tired! That anesthesia really takes a toll! And quite a bit happens in your body (especially when they remove something, so your body needs rest.

Good luck tomorrow, Lilly! Hope everything goes well and it's not too bad!

That's great, Illy! Now get some good rest and hope it works out quickly Get well soon!

Just showing off

Hi everyone,
I wanted to share my story here too... I stopped taking the pill in December to stop contraception, and since May we've been actively trying to get pregnant. My periods were absent for a long time (more than 3 months), but since I'd been on the pill for quite a while, my GP thought my body just needed time and prescribed medication to induce my period. Months later, my periods are still just as irregular and heavy, so I decided to contact a fertility specialist. She felt that my symptoms (irregular cycle, heavy periods, migraines, fatigue, and IBS) pointed to endometriosis. Blood tests were done, and next month I'll have an ultrasound with an endometriosis specialist. Hopefully, I'll have some clarity then... Has anyone had experience with the grades and consequences of the diagnosis? Because, of course, you start researching and come across infertility with severe forms... Hence the question/concern, hopefully someone can guide me a bit...

Hi! I read all the stories, including the ones with severe pain. I also have adhesions in my abdomen—my fallopian tubes are stuck, and the adhesions go up to my liver. I used to take serrapeptase from Dr. Best, and it helped a lot. Normally, I’d have pain for at least 2 weeks out of every month—sometimes so bad I didn’t dare walk, pee, or even move. After using serrapeptase, a natural supplement, I barely had any pain or flare-ups anymore. Really recommend it! I started at 40,000 SPUs and after 3 weeks I was up to 250,000 SPUs. I used it for about 3–4 months, and now I’ve been off it for 2 years. I only get a flare-up about once every six months. Hope this helps someone!

Hi, after a diagnostic laparoscopy, adhesions are usually found. I used to have 2 weeks of severe pain every month, with attacks so bad I didn’t even dare to walk, urinate, or move. I started reading stories online and came across Serrapeptase from Doctor’s Best. I began with 40,000 SPE, and after about 3 weeks, I was taking around 250,000 SPE. I took it for about 3-4 months and noticed a huge difference. Now, about 2 years later, I rarely have pain—maybe once every six months—even though I’m no longer taking the pills. It’s a natural supplement containing an enzyme from silkworms that dissolves cocoons, just like it dissolves adhesions. I haven’t gotten pregnant naturally yet, but I’m already so happy that I can live and work normally again and do my things instead of being afraid of having an attack. I hope this can help other women.

Hey Lilly,
That’s so frustrating to read!
I was 10 when I got my first period. When I was 11, I ended up in the hospital for the first time because I had my period for 2 weeks, then stopped for 1 week, and then started again. I had so much pain in my belly and lower back. I was sent back and forth from pediatrician to gynecologist, to an internist, and at 16 I finally ended up with a gynecologist who told me I’d get a referral to a psychologist because the pain I felt was “between my ears.” My mom got furious and demanded a laparoscopy. That same gynecologist performed the surgery... and you guessed it... endometriosis. I had stage 2. By the time I had another laparoscopy at 19, my right ovary was no longer accessible. With my ex, we tried an IUI cycle since they said the chance of getting pregnant naturally was zero, but it didn’t work out. Then I went on the contraceptive pill and stopped when I thought (with my current partner) that after a year we could possibly go to the hospital. Within half a year, I got pregnant spontaneously.
Last month I had surgery because since early January I’d been in severe pain (no periods because I’m on the pill to suppress the endometriosis), guess what! Endometriosis found again, despite pregnancy and the pill. My right ovary and fallopian tube were removed due to an endometriosis cyst; the ovary had become very large.
Girl, don’t let them dismiss you!!! I understand that a laparoscopy isn’t the solution for many, but endometriosis is a rotten condition that often can only be diagnosed that way.
I’ve started writing a book about this, hoping many women can benefit from it!!
I’d also really like to share other people’s stories, so if there are any women who want to share theirs, let me know.
Strength to you.