Forum Baby wish

Factor V Leiden miscarriages

3 replies

oktobermommy
Hi everyone, I’m curious if someone would like to share their experience. I’ve now had 3 miscarriages (16 weeks, unknown, and 6 weeks). The results from the AMC are in now regarding the investigation into my recurrent miscarriages, and it turns out I have Factor V Leiden. This is a hereditary blood clotting disorder where the blood clots too quickly, which can lead to thrombosis. On the one hand, it’s nice that they’ve found a possible cause/influence, but on the other hand, it has made me feel even more uncertain. The doctor has indicated that there is no scientifically proven medication for this. I could only participate in the alife 2 study. But then there’s still only a 50% chance that I’ll be selected and receive blood thinners. Does anyone have experience with Factor V Leiden where you didn’t get any treatment and the pregnancy went well? Or does anyone have experiences in Belgium where you do get blood thinners or medication? I’m afraid that I’ll end up being stressed for 40 weeks, worried that it could go wrong at any moment if I don’t get any treatment again..

Replies

  1. Ariel #2

    October mommy, I know someone with Factor V, and she got pregnant right away and is still pregnant (30 weeks now). After giving birth, she’ll need to inject blood thinners for a few weeks. I haven’t heard that you’d need to take this during pregnancy.

    Normally, you’d just get more check-ups with your gynecologist if you have Factor V, but you can perfectly get pregnant and stay pregnant.

    Fortunately for you, this has been discovered now, because it can have serious consequences when taking certain contraceptives.

  2. Anonymous Guest #3

    I also know someone who has issues with blood clotting and has gotten clots twice already. She has had two healthy children. I hope you have a good pregnancy too.

  3. EstHe #4

    I also have Factor V Leiden. The heterozygous variant. And I had a very healthy pregnancy, without medication. But I did have a lot of trouble with fluid retention, which led to swollen, painful legs. As a result, my legs were scanned multiple times to check the veins thoroughly for blood flow. Afterward, after giving birth, I had to inject myself with anticoagulants/blood thinners.

    I found that really terrible. After a week, my blood was checked (I think for thickness? I'm not really sure..) and when everything turned out fine, I was allowed to stop.

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