Baby wish
Persistent complaints after removal of the Mirena IUD.
Joyx
Hi everyone,
I hope you can give me some tips and advice.
A year ago, the neurosurgeon gave me the green light to get pregnant. I have a cyst in the pineal gland, which I had surgery for five years ago because it kept growing.
As a result of the surgery, I also ended up with an acquired brain injury, but let's leave that aside for now since the neurosurgeon said it has nothing to do with this...
After that surgery, I couldn't tolerate the pill as well anymore, so I had a Mirena IUD inserted shortly after. I had the first one replaced after 4 years and kept the second one for about 7 more months. Despite the brain injury, I was whistling my way through life when I look back, and I had found my balance.
Last June, we got the green light because my partner and I were ready to fulfill our big wish. However, it wasn't intended to start trying right away, but rather to prepare my body for a pregnancy.
But now, a year later, it's still not working.
In the first 8 months, I lost quite a few kilos unconsciously. I went from 63kg to a tight 45kg, which I now have to fight every day just to maintain, though of course I'd prefer to be at a normal weight for my height (1.58m). I simply can't eat enough, even though I used to have to watch what I ate. It's like my body demands more energy than I can give.
I never had 'classic' stomach pains before, only during menstruation. But now the stomach pain is mainly around the stomach area, and my intestines have also started acting differently. I love food, and my taste hasn't changed, but the symptoms I have are so extreme that I have no idea how to live with them. Dizziness, extreme fatigue, nausea, hot flashes while eating, and after eating I become ice cold; only a shower can help. My temperature is normal, around 37°C. If I try to hold out to get under the shower (because I feel so tired and awful), I get a sort of epileptic/spasmodic shock in my body, which then spreads from the stomach area down to my big toe. It's a creepy feeling. When I check my blood pressure, it's rather low than 'average', but nothing special.
I've had various tests done by an internist, but nothing came out of them. (For example, what has been ruled out: 1. food allergies, intestinal diseases like Crohn's, bacteria and parasites.)
My hormones haven't been tested extensively because the doctor saw no reason for it.
Now, next month I have an appointment with an endocrinologist, a hormone doctor, because the GP suddenly decided I needed to go to rule out additional issues.
Ten years ago, I saw a mesotherapist, and he told me then that I had a disrupted hormone balance, but no one could tell me what exactly was disrupted. I am now 26
I hope you can give me some tips and advice.
A year ago, the neurosurgeon gave me the green light to get pregnant. I have a cyst in the pineal gland, which I had surgery for five years ago because it kept growing.
As a result of the surgery, I also ended up with an acquired brain injury, but let's leave that aside for now since the neurosurgeon said it has nothing to do with this...
After that surgery, I couldn't tolerate the pill as well anymore, so I had a Mirena IUD inserted shortly after. I had the first one replaced after 4 years and kept the second one for about 7 more months. Despite the brain injury, I was whistling my way through life when I look back, and I had found my balance.
Last June, we got the green light because my partner and I were ready to fulfill our big wish. However, it wasn't intended to start trying right away, but rather to prepare my body for a pregnancy.
But now, a year later, it's still not working.
In the first 8 months, I lost quite a few kilos unconsciously. I went from 63kg to a tight 45kg, which I now have to fight every day just to maintain, though of course I'd prefer to be at a normal weight for my height (1.58m). I simply can't eat enough, even though I used to have to watch what I ate. It's like my body demands more energy than I can give.
I never had 'classic' stomach pains before, only during menstruation. But now the stomach pain is mainly around the stomach area, and my intestines have also started acting differently. I love food, and my taste hasn't changed, but the symptoms I have are so extreme that I have no idea how to live with them. Dizziness, extreme fatigue, nausea, hot flashes while eating, and after eating I become ice cold; only a shower can help. My temperature is normal, around 37°C. If I try to hold out to get under the shower (because I feel so tired and awful), I get a sort of epileptic/spasmodic shock in my body, which then spreads from the stomach area down to my big toe. It's a creepy feeling. When I check my blood pressure, it's rather low than 'average', but nothing special.
I've had various tests done by an internist, but nothing came out of them. (For example, what has been ruled out: 1. food allergies, intestinal diseases like Crohn's, bacteria and parasites.)
My hormones haven't been tested extensively because the doctor saw no reason for it.
Now, next month I have an appointment with an endocrinologist, a hormone doctor, because the GP suddenly decided I needed to go to rule out additional issues.
Ten years ago, I saw a mesotherapist, and he told me then that I had a disrupted hormone balance, but no one could tell me what exactly was disrupted. I am now 26
Replies
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Marie Guest #2
Hi Joyx,
It's really tough to read about everything you're going through. It seems pretty bizarre that you're experiencing all this just from having your IUD removed. To really investigate whether it's related to that, I'd say there's only one solution: get the IUD put back in. Of course, you don't want that because you're hoping to get pregnant, but I'm not sure if your body is ready for a pregnancy with all these symptoms, and for taking care of a baby afterward (since pregnancy is really just the beginning). That would also be one of my main questions for the endocrinologist.
Don't let them brush you off with vague answers like "let's check it again later" or something similar—you really need more than that. They should actually start investigating, because this doesn't seem normal to me.
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