Baby wish
How do we find each other?
Kim Guest ·
I understand that I'm not the only one going through all this, so my story isn't any more special than anyone else's.
I can tell you, though, that even though there are many people with fertility issues and some might read this as just another story, you feel damn lonely when you're going through all of this.
About 4 years ago, my periods became increasingly heavy, and after the GP had sent me away for a year, gave me other contraception, etc., I was finally referred to the hospital. It turned out I had 3 large fibroids. They surgically removed them, and that was supposed to solve the problem. I've had a desire for children for as long as I can remember. My current partner and I have been together for a few years. He also has a very strong desire for children. So, we started trying two years ago. Very symbolically, we threw the pill in the trash together, thinking we would glide into a new beginning.
After a month, I had very heavy bleeding. I'd never experienced anything like it before, and I immediately knew something was wrong. An ultrasound showed that there were more fibroids, but we didn't know exactly how many. During a new surgery, it turned out my entire uterus was filled with them, and I was told we should start IVF immediately. They can't remove all the fibroids because doing so would also damage healthy tissue and the lining. They remove the largest ones to make space for an embryo to implant. The bleeding, since they couldn't remove all of them, continued with full intensity.
I often sleep on a mattress downstairs near the toilet. I lose so much blood that a transfusion was even necessary, and my hemoglobin is permanently too low. Meanwhile, I'm getting hormones and medication in the hope that the fibroids won't grow too aggressively. Unfortunately, my body reacts strongly to this Lucrin depot, and the bleeding (which shouldn't really happen) continues despite these hormones.
In between, I keep getting operated on, and after each surgery, we start a new IVF attempt because that's when there's the most space for an embryo. Unfortunately, it doesn't work, and my body is worn out from all the hormones... surgeries... bleeding... IVF... transfusions.
We now had a second opinion in Amsterdam. They were shocked by the number of fibroids but also diagnosed me with a rare condition of the uterus called adenomyosis. It's quite rare, and it's unclear whether I can't get pregnant naturally due to this condition and the fibroids, or if it just isn't working. So, I can keep trying IVF, but given the heavy bleeding, the amount of hormones, and the surgeries, you can't keep that up for years. This diagnosis does mean we are now eligible for surrogacy.
I had two friends who were open to this. Unfortunately, both had a baby via C-section, which is a contraindication. Also, they were relieved after hearing this news, which I think means they weren't entirely on board with it.
So now we had to suddenly dive into the world of surrogacy.
We haven't even recovered from the other world of fibroids, etc., but we don't want to give up. I want to be able to say someday that I did everything I could.
Many people around me say I should stop somewhere. I understand... people around me see what a toll everything is taking on my body and life. But now, to throw in the towel, which for me means having my uterus removed to get rid of all the symptoms, I wouldn't forgive myself. I want to have done everything first before I can ever find peace with that.
It's hard to explain how big a desire for a child can be. And if someone had told me beforehand that I would have to do all this for it, I probably would have said I'd never do it.
I'm now just hoping
Can someone help us?
Xxx
I can tell you, though, that even though there are many people with fertility issues and some might read this as just another story, you feel damn lonely when you're going through all of this.
About 4 years ago, my periods became increasingly heavy, and after the GP had sent me away for a year, gave me other contraception, etc., I was finally referred to the hospital. It turned out I had 3 large fibroids. They surgically removed them, and that was supposed to solve the problem. I've had a desire for children for as long as I can remember. My current partner and I have been together for a few years. He also has a very strong desire for children. So, we started trying two years ago. Very symbolically, we threw the pill in the trash together, thinking we would glide into a new beginning.
After a month, I had very heavy bleeding. I'd never experienced anything like it before, and I immediately knew something was wrong. An ultrasound showed that there were more fibroids, but we didn't know exactly how many. During a new surgery, it turned out my entire uterus was filled with them, and I was told we should start IVF immediately. They can't remove all the fibroids because doing so would also damage healthy tissue and the lining. They remove the largest ones to make space for an embryo to implant. The bleeding, since they couldn't remove all of them, continued with full intensity.
I often sleep on a mattress downstairs near the toilet. I lose so much blood that a transfusion was even necessary, and my hemoglobin is permanently too low. Meanwhile, I'm getting hormones and medication in the hope that the fibroids won't grow too aggressively. Unfortunately, my body reacts strongly to this Lucrin depot, and the bleeding (which shouldn't really happen) continues despite these hormones.
In between, I keep getting operated on, and after each surgery, we start a new IVF attempt because that's when there's the most space for an embryo. Unfortunately, it doesn't work, and my body is worn out from all the hormones... surgeries... bleeding... IVF... transfusions.
We now had a second opinion in Amsterdam. They were shocked by the number of fibroids but also diagnosed me with a rare condition of the uterus called adenomyosis. It's quite rare, and it's unclear whether I can't get pregnant naturally due to this condition and the fibroids, or if it just isn't working. So, I can keep trying IVF, but given the heavy bleeding, the amount of hormones, and the surgeries, you can't keep that up for years. This diagnosis does mean we are now eligible for surrogacy.
I had two friends who were open to this. Unfortunately, both had a baby via C-section, which is a contraindication. Also, they were relieved after hearing this news, which I think means they weren't entirely on board with it.
So now we had to suddenly dive into the world of surrogacy.
We haven't even recovered from the other world of fibroids, etc., but we don't want to give up. I want to be able to say someday that I did everything I could.
Many people around me say I should stop somewhere. I understand... people around me see what a toll everything is taking on my body and life. But now, to throw in the towel, which for me means having my uterus removed to get rid of all the symptoms, I wouldn't forgive myself. I want to have done everything first before I can ever find peace with that.
It's hard to explain how big a desire for a child can be. And if someone had told me beforehand that I would have to do all this for it, I probably would have said I'd never do it.
I'm now just hoping
Can someone help us?
Xxx
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