Forum Baby wish

How do we find each other?

4 replies

Kim Guest ·
I understand that I'm not the only one going through all this, so my story isn't any more special than anyone else's.
I can tell you, though, that even though there are many people with fertility issues and some might read this as just another story, you feel damn lonely when you're going through all of this.
About 4 years ago, my periods became increasingly heavy, and after the GP had sent me away for a year, gave me other contraception, etc., I was finally referred to the hospital. It turned out I had 3 large fibroids. They surgically removed them, and that was supposed to solve the problem. I've had a desire for children for as long as I can remember. My current partner and I have been together for a few years. He also has a very strong desire for children. So, we started trying two years ago. Very symbolically, we threw the pill in the trash together, thinking we would glide into a new beginning.
After a month, I had very heavy bleeding. I'd never experienced anything like it before, and I immediately knew something was wrong. An ultrasound showed that there were more fibroids, but we didn't know exactly how many. During a new surgery, it turned out my entire uterus was filled with them, and I was told we should start IVF immediately. They can't remove all the fibroids because doing so would also damage healthy tissue and the lining. They remove the largest ones to make space for an embryo to implant. The bleeding, since they couldn't remove all of them, continued with full intensity.
I often sleep on a mattress downstairs near the toilet. I lose so much blood that a transfusion was even necessary, and my hemoglobin is permanently too low. Meanwhile, I'm getting hormones and medication in the hope that the fibroids won't grow too aggressively. Unfortunately, my body reacts strongly to this Lucrin depot, and the bleeding (which shouldn't really happen) continues despite these hormones.
In between, I keep getting operated on, and after each surgery, we start a new IVF attempt because that's when there's the most space for an embryo. Unfortunately, it doesn't work, and my body is worn out from all the hormones... surgeries... bleeding... IVF... transfusions.
We now had a second opinion in Amsterdam. They were shocked by the number of fibroids but also diagnosed me with a rare condition of the uterus called adenomyosis. It's quite rare, and it's unclear whether I can't get pregnant naturally due to this condition and the fibroids, or if it just isn't working. So, I can keep trying IVF, but given the heavy bleeding, the amount of hormones, and the surgeries, you can't keep that up for years. This diagnosis does mean we are now eligible for surrogacy.
I had two friends who were open to this. Unfortunately, both had a baby via C-section, which is a contraindication. Also, they were relieved after hearing this news, which I think means they weren't entirely on board with it.
So now we had to suddenly dive into the world of surrogacy.
We haven't even recovered from the other world of fibroids, etc., but we don't want to give up. I want to be able to say someday that I did everything I could.
Many people around me say I should stop somewhere. I understand... people around me see what a toll everything is taking on my body and life. But now, to throw in the towel, which for me means having my uterus removed to get rid of all the symptoms, I wouldn't forgive myself. I want to have done everything first before I can ever find peace with that.
It's hard to explain how big a desire for a child can be. And if someone had told me beforehand that I would have to do all this for it, I probably would have said I'd never do it.
I'm now just hoping
Can someone help us?
Xxx

Replies

  1. Moedertjuh #2

    Girl, what a heavy story. I don't have personal experience with what you've had to go through, but I can definitely imagine how incredibly tough this must be. Both physically and mentally! You must always keep hope alive; luckily, there are several ways to fulfill your desire for a child. I understand that carrying a pregnancy yourself is of course the preferred option. But you know, in the end, a pregnancy is only 9 months, and it's about the final result. Giving that little one all the love. How the baby will come into your family might still be unclear, but keep working towards your wish! Wishing you lots of success and strength with your physical complaints.
  2. Kim started this #3

    Thank you so much for your kind response!
    A surrogate mother is a big dream, but it's so hard to find the right person. But as you say... keep hoping and don't give up... and also keep living...
    Thanks again for your reply.

    Love, Kim
  3. Ginger11 #4

    Hi Kim, I have absolutely no experience with this, so I can't help you out or say anything useful. But I do want to say that I really admire you for sharing your story like this. It must be incredibly heavy for you both.
    Wishing you lots of strength I hope a beautiful baby will join your family soon in some way!
  4. Fay Guest #5

    Hi Kim,
    I came across your story and it's so relatable. Since 2013, I've been going in and out of the hospital. I turned out to have a fibroid tumor of about a kilo. I went to Tilburg and Rotterdam, and first they tried embolization, but that didn't help. Eventually, in 2015, I had surgery, and beforehand they said they weren't sure if they could keep my uterus because it was too big. Luckily, the surgery went well, and they removed it properly. Unfortunately, in 2016, it turned out I had a new one (it's now 4 cm). I had to go to the hospital every 6 months. About a month or two ago, I had a very heavy period, which made me feel really unsure. I called the hospital in a panic, and the receptionist said it was normal. I felt completely unheard, but whatever. Last Monday, I went for a check-up again, and it hasn't grown anymore. I'm allowed to stay away for a year. My 'luck' is that it's on the outside of my uterus. I know exactly what you're going through. Although family and friends support me well, they often don't understand the drama of uterine fibroids. If you'd like to get in touch, feel free to email me ([email protected]). I don't have an account here.

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